Talking About Hearing Loss — in Phoenix

I’m just back from the annual HLAA convention. This one was in Phoenix, where the average temperature at this time of year is 107 degrees. That’s average!

I thought I’d skip this one, which was my 13th. Not only is Phoenix hot but it’s a long flight, 5 and a half hours nonstop from New York. But then I thought, Why would I skip the one event where my hearing loss doesn’t matter? My loss is severe enough, even with a cochlear implant and a hearing aid, to make any kind of gathering, large or small, a challenge. The. HLAA Convention is one where every program is captioned, the meeting rooms have hearing loops, and everyone is wearing a name tag.

My first Convention was in Washington, D.C. – actually, Crystal City in Arlington Va. I went to the Friday morning research symposium, about reversing sensorineural hearing loss, the most common type. The panel was terrific, and I ended up writing a chapter about the work in “Shouting Won’t Help” (Chicks and Fish Do It, Why Can’t We?). But I was too uncomfortable with my hearing loss to introduce myself to anyone and left shortly after the symposium.

My second was in Providence. I stayed one night. Still too shy to introduce myself, I had dinner at the hotel bar. A tall lanky man struck up a conversation. It turned out he belonged to the New York City Chapter and he urged me to come to one of their meetings. It changed my life. I might eventually have found HLAA on my own and I might even have found the chapter (hearinglossnyc.org). But information was sparse in those days and it could have taken years.

I have lots of friends after all these years at HLAA Conventions but one of the things I like best about attending is meeting new people. Some of them are new to the Convention. Some are just new to me. I’m still grateful for the man at the bar who invited me to the New York Chapter, and in that spirit I try to reach out to newcomers.

This year’s Research Symposium addressed “The Emotional Side of Hearing Loss,” with four distinguished speakers. Research clinicians Barbara Weinstein Ph.D, Kathy Pichora-Fuller Ph.D, Ivette Cejas Ph.D, and Gael Hannan, author of several books on hearing loss and a great speaker. Dr. Cejas did double duty, presenting for Peter Dixon MD, whose flight was delayed. I think this is the first time this topic has been addressed head on. Acknowledgement that hearing loss can be emotionally destabilizing is something relatively new. When “Shouting Won’t Help” was published, I wrote not only about my hearing loss, but also the emotional upheaval. I was criticized for that by some older HLAA members, and it really stung. I am glad to see HLAA address this difficult reality, one that many of us experience.

You can read about the many other educational workshops offered, on the HLAA website. Some of these will be available as videos. Two were presentations I thought would be great for out chapter meetings next year, and I signed the speakers up on the spot.

Next year’s Convention is scheduled for June 12-14 in Indianapolis. I’ll be there!


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11 thoughts on “Talking About Hearing Loss — in Phoenix

  1. Phoenix was hot! However, the resort was so beautiful. The unique way they created to the conference center meant you did not need to go outside in the heat. I deeply enjoyed the convention. I took my two adult grandchildren with me as I wanted them to hear the people at the symposium. They run a company called Inspire Change and many of the areas covered in the symposium also occur with their patients. They deeply enjoyed the entire conference and one of them or my 16 year old grandson who lives in Phoenix accompanied me to each talk.

    Your chapter does the very best meetings. I have previously enjoyed your book, always read the column and would have introduced myself to you if I had seen you.

    Well written synposis. I go for the same reason you do. To sit in a room with 500 people that have a hearing loss and be able to follow alone is sooo marvelous.

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  2. I attended especially to hear the presentation from the Bionic Ear Lab at the University of Southern California, and it was fun! The group, which meets on Zoom Thursdays, is focused on people with cochlear implants improving their perception of various musical sounds. Everyone is welcome to attend. The URL for the group is https://sites.usc.edu/bionicearlab/the-ci-music-hour/.

    (By the way, I live in central Florida, where the average temperature this time of year is a humid 93F. The dry Arizona 107F heat felt more comfortable to me.)

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  3. I enjoyed meeting you and many of the other attendees at the convention. I didn’t even mind the (dry) heat!

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  4. Hi Katherine, I recognized you in an audience at the convention and planned to say hi later but didn’t see you again. Just wanted to say your “When Shouting Won’t Help” book captured the sense of stress and frustration felt when working with hearing loss that I also experienced. At the Welcome Back dinner, I mentioned your name and your book to my tablemates from different parts of the country.

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    • I’m sorry we didn’t meet. Your name isn’t on this comment. If you’d like to share it, I’d love to know who you are and where you’re from and what you hearing loss experience has been.

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